Author Topic: Celticsblog,,,more than just a blogging site and thanks for being just that!  (Read 7995 times)

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Offline nickagneta

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I don't know how many noticed but I got a couple of PMs and a couple of comments regarding my return to the Current Events forum this past weekend. I did it for a specific reason. I needed to keep my mind off things that were happening in my life and there just wasn't enough basketball talk ongoing to sustain my attention. I needed to talk. I needed to think of other things. I needed to escape a bit from what has been happening in my life.

And Celticblog provided that. Thanks.

You see there was this situation with my family that happened. I moved from RI back to my home town and into my grandmother's house 3 years ago because my grandmother needed care. She's now 97 and in a severe state of dementia, which, for those that don't know, is much like an advanced case of Alzheimer's Disease. My family is small. My grandmother had only two kids, my father and my uncle. My uncle is terminally ill and couldn't care for his mother. My father, being kind here, is a selfish man that had trouble raising my siblings  and I, nevermind trying to care for his mother. My 2 brothers and sister have distanced themselves from the family because they wanted to escape my mom and so have also distanced themselves from having to take any responsibility for family events or happenings or needs.

My mom is seriously mentally ill and wasn't there for us and is also a very selfish person. Being around her at family events was like sitting around a time bomb just watching it and waiting for it to explode. Being around her at home meant worse things than that. And she HATES my grandmother. So when it came down to it there really was only one option in who had to take care of my grandmother. It was always her wish never to go to a nursing home and I wanted to at least give her that wish after she was so instrumental in raising me and making me the person I am today.

Well, Friday, she fell and broke her hip. She's 97, is incontinent, barely able to walk, doesn't know how to use utensils at the table anymore without instruction, has about a three second short term memory, has zero long term memory to the point that she doesn't even remember her brother's and sister's name or a 56 year marriage. Her quality of life is just awful and as undignified as one's life can get.

So the options were to not repair the broken hip, let her return home, bedridden for the rest of her life and make her comfortable while she dies over the next couple months or do major surgery on her hip, repairing it, with the prospect of her ever walking again being very small. The doctors at MGH recommended the surgery because they said it would improve her quality of life. What quality of life? She barely remembers who she is and is cognizant of only two people, my wife and I. She doesn't even remember having kids.

So those were the options and neither one was a good one.

Except, my father, who has her power of attorney and is the medical proxy, gets to make the decision because of paperwork done 20 years ago. She has a living will that states she doesn't want to receive medical attention for irreversible and/or terminal and/or incurrable disease or mental illness and although she respects life and doesn't want to be euthanised, she wouldn't object to medication that would make her ending more comfortable, even if that medication hastened the onset of death. She said in the living will she didn't want to be kept alive if there was no prospect in maintaining the dignity of life. She also has a DNI/DNR, Do Not Intubate/Do Not Resuscitate, order.

So although my uncle and I, the primary and only caregiver as I get help from exactly nobody in caring for her, recommended that perhaps it was time to let nature take it's course, send her home with a boatload of painkillers and care for her until the end, my father chose the MGH recommend surgery. He suspended the DNI/DNR for the surgery and after consulting with the doctors and a lawyer friend thought he was within his rights to give the okay for the surgery even though it violated the spirit of the living will. I'm appalled. My father is giving my grandmother more time to be a senile, empty, undignified shell of herself that can't even remember to hold her bladder or eat and has little propect of ever walking again while taking on none of the responsibilities of his decisions or considering how his decision will impact my family and I.

I guess I could have tried to get a court ordered injunction but she broke her hip on Friday afternoon, was told about the recommendations on Friday night and by Saturday morning, they were doing the surgery. I can't even discuss how hurt, disgusted, angry, and violated I feel not only for me but for my wife, kids and grandmother, who all will be effected by this decision made by someone that will refuse to shoulder any of the responsibility in caring for my grandmother.

So rather than drink myself useless since Saturday morning when the stuff hit the fan, I've tried to keep my mind occupied elsewhere. I went out and did some stuff but whenever I was home my mind returned to the predicament at hand. So, I thought.....Celticsblog. Let's go chat Celtics and basketball and sports. That's what I wanted. That's really what I needed. And although the basketball talk was kind of muted this weekend, the Current Events kept my mind occupied and forgetting what it needed to forget.

I can always count on Celticsblog and my friends here to put a smile on my face, to share an experience with, to debate and teach me, to give me something insightful to think about, to give me a spin on the news of the day, whether that is of the sporting variety or not, and to keep me entertained. I considered Friday night into Saturday night(7:00 to 7:00 ala 24 the TV series) to be one of the 5 worst days in my life and you guys and this site got me through it relatively unscathed and still in possession of my sanity and in control of my anger and other emotions. Thanks once again.

BTW, I will be returning to my moritorium on posting in the Current Events area as I can see that very little has changed for the good there.

Offline CoachBo

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Wow.

As someone who was his grandfather's primary caregiver for a decade due to the same kind of familial selfishness and irresponsibility, my hat is off to you, Nick.

The bottom line is that all you can do is the best you can. There's no greater responsibility that the younger generation has than to make sure our elders are taken care of in the fourth quarter of their lives.

There's no lower trait in a human being than those who don't fulfill that obligation. I've got an uncle right now who's been warehoused in a nursing home because my aunt is too vain and too self-absorbed to help him. Those who behave like that will answer to a higher being on Judgment Day.

You care and you tried. That's all anyone can ask of you, including yourself.
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Offline nickagneta

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Wow.

As someone who was his grandfather's primary caregiver for a decade due to the same kind of familial selfishness and irresponsibility, my hat is off to you, Nick.

The bottom line is that all you can do is the best you can. There's no greater responsibility that the younger generation has than to make sure our elders are taken care of in the fourth quarter of their lives.

There's no lower trait in a human being than those who don't fulfill that obligation. I've got an uncle right now who's been warehoused in a nursing home because my aunt is too vain and too self-absorbed to help him. Those who behave like that will answer to a higher being on Judgment Day.

You care and you tried. That's all anyone can ask of you, including yourself.
Thanks, Coach, that means a lot to me. TP.

Offline dark_lord

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hang in there nick.  we are all thinking of you and hope things turn out ok

Offline Redz

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Some heavy stuff there Nick.  What you're doing is a good thing.  It sucks that your father stepped in like that, but it's a crappy situation that you have no control over.  Keep doing the right thing to the degree that you can, and know that you can lean on this place for whatever it's worth. You get back what you put in.  I know that notion  might be hard to keep a perspective on at this point with your grandmother's situation, but you've done right by her, and that's what's important when you look in the mirror.

Yup

Offline Roy Hobbs

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Wow, nick, that's a tough one.  I feel for you and your family.

Have you considered petitioning the court for a change in guardianship?  You can't do anything about the surgery, obviously, but you could at least give yourself control over situations like this in the future.  Obviously, that may involve some expense -- and more, if you hire an attorney -- but it may be worth it.  If you need some help looking into Mass laws, let me know.

It's unfortunate that your father is acting the way he is.  I'm assuming that his motivation is that he doesn't want to have to live with the guilt of being the one who chose to let his mother die.  If he wants to make a decision like that, he should at least do the right thing, and offer to care for his mother.  They're not a lot left to say, other than that we all feel for you.

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Offline wdleehi

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Sorry to hear about that. 


I have a lot of respect for those who sacrifice to help take care of loved ones.

Offline FLCeltsFan

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Wow! that is a lot going on in your life.  My hat is off to you and I know you will be rewarded one day for your selfless giving and care of your grandmother.   My daughter works in a nursing home and is appalled by the way children ignore and treat their parents in there.  Seems like every day there is another story about one or another.  And it is so sad. 

Hang in there Nick.  I know it has to be tough on you right now.   You and your grandmother and family are in my prayers.   

Offline ChampKind

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I'm sorry to hear that, Nick.  You're doing a great thing and your feelings of hurt are only rooted in the immense pleasure and love you and your grandmother have shared.  I hope that everything can work out for you, even if the best case scenario is grim.  Good luck with everything - better days are ahead.
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Offline Hoyo de Monterrey

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My mom just finished the same stages caring for my grandmother you are going through with little to no family support as well. As you know, "finishing" such a task has only one outcome. But her mom is in a better place now, and your grandmother will be there soon hopefully. Because it is a strange comfort when it's over, depending on your religious beliefs, to know that the shell portion of her life is over. I wish there was more that could be said to keep you going, but having seen it as well there's not much. Just remember someday, sooner or later, the whole situation will be peaceful. Hang in there.
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Offline ACF

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Without saying too much, I guess
we can all agree that family can
be the worst (a big CAN be).
My thoughts go out to you, Nick,
and the best of luck to ya...

Offline JSD

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Nick, that's a tough one. I understand your father wasn't too involved growing up, but aside from this recent event, how is your relationship with him now? Is sitting down with him and having a rational conversation about this decision a possibility? Can he see your perspective? and if he goes against what you believe is the right decision maybe you should offer him the honor of caring for his mothers disadvantaged life that he elected to preserve. God Bless

Offline celticmaestro

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There's not a lot I can say that hasn't already been said, but I really hope things pan out well for you Nick. The fact that I can't say much without sounding repetitive is a testament to this great site and the great people on board. I'm glad you have a place to come to help get your mind off things and I know that there are a good bunch of people here that will support you and help you.

You're a good person who has the respect of many and as long as you can look at yourself and realize that, you'll be fine in the long run.

Offline nickagneta

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TP's to all you guys, and girl, for your words of support and kind thoughts and prayers. They're appreciated more than you could ever know.

Offline LarBrd33

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